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Case studies
A family recently moved from West Lothian to Edinburgh and saw their short breaks reduced from 14 hours per week to 6 per week.
On Orkney a child can wait years before being allocated respite at the residential short break facility.
A family offered 2 nights per month residential respite for their child with complex and multiple support needs cannot take up the place because the family live 20 miles away from the short breaks unit and cannot drop off one child in time to be back to collect the other from school.
Has your family's experience been similar? Tell us about it.
It's not all bad news though as Ruth's story shows. And there are some great short break providers and resources out there for families like yours.