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Parent Participation Project

The Scottish Government has funded Children in Scotland to undertake participation work with parents of disabled children. This aims to give parent carers of disabled children in Scotland an increased opportunity to inform the development of the relevant legislation and policy and to drive the continual improvement of services at both national and local levels.

Throughout their lives disabled children may need help from a range of services - health, education, social care or social work. As a parent you know your child best. It is important you know how you can help shape these services to meet their needs. There are now many ways that national and local government, health boards, local authorities and other organisations try to involve service users in the planning and development of the law, guidance and services. 

The Parent Participation Project has published a booklet to explains some of the ways you, as a parent, can get involved. It's called Shaping the Services You Use and can be downloaded by clicking on this link: Shaping the Services You Use

To take part in the Participation Project, obtain a hard copy of the booklet or just find out more contact Marion Macleod: [email protected]

For the most recent news and information click the link to the fSDC Facebook page

Parent Participation 2014/15 Report

fSDC ‘s Parent Participation project ran 4 events in Galashiels, Livingston and 2 in Edinburgh in March 2015. Twenty six parents attended the sessions to hear about a model of parent participation in England, discuss in an open forum their personal or group experiences of local services and what they think would make a difference for families with disabled children.  This report collates the sessions, experiences and aspirations gathered from the 4 events. Download the Parent Participation Report for full details.

To find out how parents are able to engage with, and influence, policy decisions they are carrying out a number of surveys and the initial findings of the first Survey are on the News Page.


Children in Scotland in partnership with for Scotland’s Disabled Children is carrying out a second survey of parents and carers, aimed at finding out more about the needs of families with a disabled child.

The survey will enable fSDC and Children in Scotland to represent issues important to families to the policy and decision makers, and we will be using the data gathered to assist the Scottish Government in finding ways to involve parents more meaningfully, both at a national and local level.

The survey is available here:

Please share our survey with other parents and/or any relevant contacts.  We can also provide the survey in hard copy with a prepaid return envelope on request.

For more information, or to request a hard copy, please contact Fee Ferguson at [email protected] or on 0131 222 2444.  

2014 Parent Survey