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Parent Participation Project

The Scottish Government has funded Children in Scotland to undertake participation work with parents of disabled children. This aims to give parent carers of disabled children in Scotland an increased opportunity to inform the development of the relevant legislation and policy and to drive the continual improvement of services at both national and local levels.

Throughout their lives disabled children may need help from a range of services - health, education, social care or social work. As a parent you know your child best. It is important you know how you can help shape these services to meet their needs. There are now many ways that national and local government, health boards, local authorities and other organisations try to involve service users in the planning and development of the law, guidance and services. 

The Parent Participation Project has published a booklet to explains some of the ways you, as a parent, can get involved. It's called Shaping the Services You Use and can be downloaded by clicking on this link: Shaping the Services You Use

To take part in the Participation Project, obtain a hard copy of the booklet or just find out more contact Marion Macleod:

For the most recent news and information click the link to the fSDC Facebook page

Parent Participation 2014/15 Report

fSDC ‘s Parent Participation project ran 4 events in Galashiels, Livingston and 2 in Edinburgh in March 2015. Twenty six parents attended the sessions to hear about a model of parent participation in England, discuss in an open forum their personal or group experiences of local services and what they think would make a difference for families with disabled children.  This report collates the sessions, experiences and aspirations gathered from the 4 events. Download the Parent Participation Report for full details.

To find out how parents are able to engage with, and influence, policy decisions they are carrying out a number of surveys and the initial findings of the first Survey are on the News Page.


Parents of children and young people with additional support needs who have struggled to find assistance and advice will now benefit from a new map of services which covers all of Scotland and allows them to pinpoint exactly what is in their area.

The development of the map was one of 21 recommendations from the strategic review of learning provision for children and young people with complex additional support needs. The final report  from the review, The Right Help at the right time and right placepublished in November 2012, highlighted the “fight” some parents faced to obtain help and advice.

The map, which features 20 different categories of 1,000 education, access to education and family support services, has been put together and will be maintained by EnquireSally Cavers, Enquire’s manager, explains a bit more about the resource:

“We were delighted to support and now deliver on this recommendation from the Doran review and have used our experience and knowledge to pull together and collate this information for parents across Scotland. We hope this map of services saves parents time, presents key information in a clear way and becomes a very well used resource for everyone supporting children with additional support needs”.

Teresa Catto, a parent from Edinburgh and founder of Autism in Scotland, a forum for parents and carers of children with autism, explains why the resource will help:

“Parents are often bewildered by the new world they find themselves in when they have a child or young adult with additional support needs.  A central information point will be incredibly useful and will increase how empowered parents feel. I will definitely be recommending the ‘find a service’ database put together by Enquire to the parents I support across Scotland.”

Magali Redding, from Eczema Outreach Scotland, one of the services featured on the map reiterates these thoughts:

“As the Scottish charity for families of children with eczema, we welcome the launch of this new resource for families and students. Too many families still struggle to access adequate education for their child because of their condition and its impact on their school life. In many cases, information and support from a specialised voluntary organisation or public service will empower families to improve the child’s schooling experience greatly and make a long-term difference. A central place to search for support in this field will be extremely useful to all parents, carers and young people looking for some practical advice.”

To find our more about progress on the other recommendations from the Doran Review, visit the Scottish Government website