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Sweating it!
Ok, so I have shared a bit about Katie's Respiratory problems that's on-going at the moment. On the back of all the symptons etc..... It was felt that she should have a sweat test to be tested for Cystic Fibrosis - Well they just wanted to rule it out.
So we went up for the test on the Thursday morning, they put the discs on her leg and put the tens machine on, 5mins later they put the main disc on that catched the sweat. So we had to go away for half an hour and come back. When we returned she took the disc off and said oh there is no sweat we have to do it again! Oh no the wee soul was exhausted but needs must, so we repeated the same process for the other leg, came back after half an hour and again it didn't work! We arranged to go back the following Thursday morning 16th Sept (which was the Thursday the pope came to town) where they would have to do the test the old way on her back!
Thursday 16th September came, and Derek left for work so I was upstairs sorting out the girls the usual - when I heard Derek coming back into the house he was shouting and sounded really angry - I ran down and he said his 4 tyres on his car had been slashed - He then told me that my car (well Katie's car) also had the 4 tyres done, and that my next door neighbour and the neighbours across the road had also had their tyres vandalised. I felt sick, I was so angry and upset but I was pysically sick - Who could have done this? What kind of person actually gets something out of doing this? I called the police who were already attending 10 other calls in neighbouring streets for the same thing! AllI kept thinking about was getting Katie to Yorkhill then bobath! It wasn't going to happen today.
I phoned the RAC who eventually came out and towed me to kwik fit to get new tyres, but we had missed our Appointment so when I called we arranged it for the following Thurday - 3rd time lucky.
We got Katie the following week to Yorkhill for her sweat test, this time they done on her arm. And thankfully it worked, now we just had the weeks wait for the result. I had been googleing CF, as you do, and Katie definitley fitted the criteria she had all the symptons. As much as we prayed she didn't have it, in a way I wanted them to say she did then that way we would at least have an answer and we would know how to help.
The following week we had an appointment with Katie's respiratory doctor who was also giving us the results. Yeahhhh it was negative. But...... it now means she has to go in next week (if it goes ahead) for a few procedures to see whats going on inside. The ENT doctor is also going to give Katie some Botox injections while under anaesthetic as her secretions have got worse, her suction machine is on more, she is on a full hyoscene patch every day sometimes twice a day, these patches are not meant to get changed at least every 48hours!
I shall keep yous posted with this.
Posts: 1
Reply #1 on : Mon November 01, 2010, 07:50:08
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