Where to start, Lee's appeal for DLA didn't go too well and he was not awarded anything more , so he still has the very lowest amount of DLA which I am really upset about. This has made Lee's mood  get even lower and I am hurting for him. He got the devistating news that his HNC Art Course has been cancelled due to all the gov cuts. So now he is left feeling that he has no direction at all and is hating his illness and not quite knowing how he is supposed to feel. We are in the process of filling out a new form for DLA so fingers crossed that he gets better results this time.

Still no blood results from eye clinic to determine whether he has Myathenis Gravis or not. It won't make any difference I guess as both boys have so many unusual diagnoses any way so what's another one. I hope Lee will do some voluntary work through the Summer just to try and keep himself motivated and interested in something. He has an option to work with the homeless doing art and craft stuff and also to work in a studio with my friends husband who is an Art Teacher at Uni. Hopefully it will make Lee feel better.

Connor on the other hand, was at the Pediatric Dr the other day in the hope that he was going to be handed over to Adult Srvices but as usual it didn't happen because it was another Dr that doesn't really know Connor so I think it will be planned for the next visit which will be just before he turns 18 in October. The Dr was quite happy with him even though Connor was saying that he was so fed up with all the pain that he was having. He has been suffering from back and tummy pain a lot and sometimes he vomits but the comment was that if he can not pinpoint when and why it was happening then they were not going to look into it. Connor has a large spleen and liver and yet this was "nothing to worry about", so my boy just has to suffer with the pain. He was also told that for his pain  that he should just  wait until he seen the pain specialist who he just happened to be seeing the following day. The Ped was amazed when we brought up a new problem which was that his elbows don't straighten and are held at awkward positions, so he will be referred to physio and an Orthopedic Surgeon. More surgery, thought we would be done by now.

 At the Pain Clinic his Dr wants him to try Fentanyl Pain patches which I've been told are very addictive so I am not so keen for him to try them. Still in the end it's Connor's choice. Believe it or not Connor hasn't even been started on his Concerta for his ADHD. No one communicates here in North Ayrshire so maybe it will happen before he starts college in September.

On a good note Connor has finished all his exams and will Graduate High School on the 13th June. His celebration will have to wait until the following weekend as I am off to Aviemore for a carers confrence that weekend. Time for me to relax and recharge my batterries. My Mum and Dad will be keeping an eye on the boys while I'm away so that there will be no Wild Parties. Well I think that's all my news for now.