The Education system let him down big time. I not only had to fight for three years to get his Record of Needs and IEP but I always had to be on their backs to make sure that they supported Connor when it was needed. There where times when I was ready to pull him from the school just to make life easier but me being me dug my heals in and made sure that Connor got a education that he deserved. Connor had to have support because he is dyslexic and has Mearse Irlin Syndrome, though even trying to get these diagnosises down on paper was very challenging. When Connor was diagnosed this year with seizures and ADHD the school were so glad that they didn't have to give him anything in place as he was in his last year. Now that he is at college what a difference, the support is all in place and he also got a brand new laptop. At least I can relax with his education and career. He loves college and has settled in well.

Social Work well what can I say about that. I called them last week to see about the transition only to be told that his file was closed in April of this year. I was shocked at this as I had asked for a carer's assessment and it had never been carried out and no one had told me that his file had been closed. I kind of lost my head at the duty worker and it must have been bad as a few hours later the social worker who was responsible for Connor's case called me back as he said he was concerned that I was anxious and that could he do a home visit next day, which he did. Well I got to tell him a few home truths and he tried to talk himself out of it by saying that I was no longer a carer now that both my boys were all grown up and that they had to do things for themselves. That made me so angry that I could feel my blood pressure soar. Nothing has changed except the boys ages, I still do the same things for them. and still at times need support. I knew that nothing was going to get solved so we just agreed to disagree. We now don't have support of any kind from social work. He did say that it is a community care assessment that I need and to ask Adult social work for.

Now to Peadiatrics, I was under the illusion that they would introduce Connor to an adult consultant that would take and co-ordinate his care considering that he still has quite a number of health issues going on, but no this is not going to happen either. Connor still attends some out patient clinics and still has different surgeries to go through. He is still having issues with his gallbladder and he needs it removed, it is now running into the fourth week and still no appointment with the aneathitist which is just shocking.

 He did this week get an appointment for the Orthopedic surgeon and it looks like he is facing more surgery on his elbows. X-rays showed that Connor has thickening of the bones at the elbow joints. Dr thinks that it is very un usual for someone so young to have this condition and that they are not sure if the soft tissue is also affected so more scans will need to be carried out. The Dr wants to talk to his Peadiatric Orthopedic surgeon who has dealt with him in the past. Not enough is known about Noonan Syndrome so they are not sure that this is all part of it or not. It could be from when he had anabolic steroids at age 14yrs, it could be a side affect from that.

Well that's my vent over with for now. I will update when we have any news on Connor's most needed surgery.